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Nederlands

“I’m not done living yet”

I have lived with a malignant brain tumour since I was 29. In September I had radiotherapy every day for three weeks. Alongside that, I follow treatments that my health insurance doesn’t cover and that I pay for myself. They give me time — time to make the most of life.

To keep paying for them over the coming year, I’m raising €50,000. Will you help?

Roos van Dijk
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What has happened so far

I’m Roos van Dijk, 37, a visual artist. At 29 I was diagnosed with a malignant brain tumour, after being referred because of a strange black spot in my field of vision.

After surgery and twelve rounds of chemotherapy, the tumour stayed quiet for 4.5 years and I was able to pick up my life again, with a 30% visual impairment.

In August 2023 the tumour started growing again. The chemotherapy didn’t work. I had awake surgery — I was conscious for part of it — followed by radiotherapy, without the hoped-for result. One treatment remained, with less than a 10% chance of success. After that, in my doctors’ own words: “our toolbox is empty.”

I couldn’t accept that. I did my own research and talked to other people with cancer. One of them pointed me to a clinic in Germany. In December 2024 I was treated there for the first time.

After that, things went well for a year and a half. The tumour was stable and no new symptoms appeared.

In early September 2026 the MRI scan showed something different: a new active tumour site in the other half of my brain. Looking back, it had already been visible three months earlier as an indefinable little spot; now it shows up with contrast fluid. Small, but active.

Action was taken straight away. In September 2026 I had radiotherapy every day for three weeks at the Radiotherapy department of VUmc in Amsterdam. In the second week, the fatigue set in. Whether it has worked, we will only know at the next scan, probably around December 2026.

The Dutch newspaper De Gelderlander talked to me about my diagnosis and what I still want (in Dutch)

What I hope to gain

I want to be honest about this, because I don’t want to give anyone false hope.

No treatment is going to cure me — I was never promised that in the Netherlands either. What I hope to gain is time, and time of good quality.

No miracle, no breakthrough. Time. Time with the people around me, and time to make the most of life.

What happens in Germany

People often ask me what these treatments actually involve. Here it is.

The clinic

Arcadia Praxisklinik in Bad Emstal, near Kassel. A clinic for integrative medicine and cancer treatment, led by Dr. med. Henning Saupe. Every patient gets an individual treatment plan. I’m still in regular contact with him.

What I did there

Two periods of two weeks as an inpatient, with treatments every day, combined with a low-carbohydrate diet:

  • IPT — insulin is used to lower the blood sugar level, after which infusions are given. In my case combined with a reduced dose of chemotherapy (lomustine and Alimta).
  • Hydrogen therapy — by inhalation.
  • Hyperthermia — targeted raising of the temperature of the tumour tissue.
  • PEMF — pulsed electromagnetic field therapy.
  • Infusion therapy — with vitamin C, curcumin and methylene blue.
  • Taurolidine — by infusion, for five days.

The tests in Düsseldorf

On Dr. Saupe’s advice, my hospital’s laboratory sent tumour tissue from an earlier operation to NextGen Oncology Group in Düsseldorf. There it was tested to see which substances my tumour cells respond to, both chemical and natural. Based on those results, I now take a number of them every day.

What continues alongside

The treatments from Germany continue in a scaled-down form. Every ten days I go to Amsterdam for hyperthermia and a vitamin C infusion. Once a month I go to Gronau, just across the German border, for a curcumin infusion. At home I have my own hydrogen device. On top of that, I follow a strict keto diet and take supplements every day.

During the radiotherapy in 2026 I went to the Centrum voor Hyperthermie in Amsterdam twice a week, to give the radiotherapy an extra boost and to spare healthy cells as much as possible. My oncologist and radiotherapist know about this.

How this relates to my treatment in the Netherlands

This comes on top of my hospital care, not instead of it. My doctors know about everything I do in Germany. They can’t give these treatments themselves: they fall outside the protocol that an academic hospital is bound by.

What they have told me is that they are surprised it stayed stable for so long. This type of brain tumour is aggressive. That I had no trouble from it for a year and a half is not something to take for granted.

What this is and isn’t

This is not a cure, and nobody has promised me anything. These are complementary treatments that fall outside what my insurance covers. I applied for reimbursement from my health insurer and corresponded with them at length. The answer is no, because these treatments are not on their list.

What I want now

After the radiotherapy I’m going back to Arcadia for a new two-week treatment period, at the end of October. Dr. Saupe has drawn up a new treatment plan with a quote.

Where the money goes

I’m raising money for the coming year: one new treatment period in Germany, plus the treatments that continue alongside it.

New treatment period, Arcadia (two weeks, end of October 2026)€21,729
Hyperthermia and vitamin C infusion, 36 × €495€17,820
Curcumin infusion€3,900
Supplements€2,400
Contingency€4,151
Total€50,000

I’m not counting the travel to Amsterdam and Gronau or the extra cost of the diet. The amount for Arcadia is taken from the quote.

Donate

Donations go through WhyDonate. They charge no platform fees — only the bank’s transaction costs. You can donate anonymously and leave a message. Every amount helps me.

Choose an amount on WhyDonate

€495 is one hyperthermia treatment with infusion.

Three cards as a thank-you

If you donate €50 or more, I’ll send you a set of three cards with my work. Email your donation receipt and your address to kaarten@voorroos.nl and I’ll post them to you.

The fundraiser is in my own name on WhyDonate. The money goes straight to my treatment. If there is money left over, it goes to the treatments that continue: hyperthermia, infusions, supplements and food.

What I made

Abstract, geometric work: colour fields, folded shapes, murals and installations. I studied at ArtEZ in Arnhem and the Frank Mohr Institute, and spent a period working at Hunter College in New York.

After graduating I received a start-up grant from the Mondriaan Fund. My work is part of the ING art collection, and in 2013 and 2014 I was nominated for the Royal Award for Modern Painting.

Work by Roos van Dijk: Gravity can't stop us from taking off
Gravity can’t stop us from taking off
Work by Roos van Dijk: Oblique lights
Oblique lights
Work by Roos van Dijk: Purple Foldings
Purple Foldings
Work by Roos van Dijk: Northern Lights
Northern Lights
See my full portfolio

See my work in person — and buy it

My work is on permanent display at Depot-o68, Oranjestraat 70 in Velp, near Arnhem, next to Art Gallery O-68 at number 74. The depot can only be visited by appointment. The gallery is open during exhibitions from Thursday to Sunday, 3 to 5 pm, and otherwise by appointment.

The gallery sells my work. If you buy something, you support me just as much as with a donation — and you get a painting on your wall.

Updates

To Arcadia at the end of October

At the end of September I finished the three weeks of radiotherapy at VUmc. Whether it has had an effect, we’ll only know after the next scan, probably around December.

In the meantime, the new treatment plan from Arcadia has come in. At the end of October I’m going to Bad Emstal for two weeks for an intensive treatment period. As part of it, I’ll get an infusion of taurolidine on five days. For that I’ll have a PICC line: a catheter that is inserted through a blood vessel in my upper arm, with its tip in a large blood vessel above the heart. A line like that can stay in longer than an ordinary drip.

The quote is in too: €21,729 for the two weeks. It covers IPT, the taurolidine and the PICC line, among other things. That’s close to the estimate of €21,000 that was here before.

Thank you to everyone who has already donated or shared this page. Because of you, I can take this step.

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